Services & Training Resources Centre
In this section you will find details of how EURORDIS promotes the implementation of services adapted to the needs of people living with a rare disease, as well details on the extensive training that EURORDIS provides to rare disease patient representatives.
This training is provided through free online training modules and the EURORDIS Summer School. Topics covered include: medical research, ethics, the regulatory framework, the European Medicines Agency, benefit-risk assessment & pharmacovigilance and market access.