Community action on health services

Eurordis summarises the health service needs of rare disease patients in Europe in this contribution. Patient mobility, cross-border provision of health care and centres of reference are specifically addressed. The contribution is our response to the European Commission’s consultation on health services launched in September 2006 aimed at gathering input to shape a Community framework for safe, high-quality and efficient health services.

 

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases