EURORDIS Events

Upcoming EURORDIS events

May 2019

Intimate Audrey 

1 May - 4 August, Brussels, please e mail martina.bergna@eurordis.org for more information.

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania more information

ePAG face-to-face meeting 2019

16 May, Bucharest, Romania (held as a satellite meeting to the EURORDIS Membership Meeting 2019).
For ePAG (European Patient Advocacy Group) representatives only. Please email ines.hernando@eurordis.org for more information.

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona more information

October 2019

28th ERTC Workshop 'A New PARADIGM of Meaningful Patient Engagement in the Life Cycle of Medicines'.

15 October, Barcelona, please e mail martina.bergna@eurordis.org for more inofrmation.

May 2020

10th European Conference on Rare Diseases and Orphan Products

15 - 16 May, Stockholm, Sweden, please e mail martina.bergna@eurordis.org for more information.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June, Nice, France, please e mail martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 19/03/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases