EURORDIS Events

Upcoming EURORDIS events

May 2019

Intimate Audrey 

1 May - 26 August, Brussels, more information

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania more information

ePAG face-to-face meeting 2019

16 May, Bucharest, Romania (held as a satellite meeting to the EURORDIS Membership Meeting 2019).
For ePAG (European Patient Advocacy Group) representatives only. Please email ines.hernando@eurordis.org for more information.

Universal Health Coverage: Including Rare Diseases to leave no one behind

The Rare Diseases International side event to the World Health Organization 72nd World Health Assembly.

23 May, Geneva, Switzerland, organised by Rare Diseases International in collaboration with the NGO Committee on Rare Diseases, more information.

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona more information

October 2019

28th ERTC Workshop 'A New PARADIGM of Meaningful Patient Engagement in the Life Cycle of Medicines'.

15 October, Barcelona, please e mail martina.bergna@eurordis.org for more inofrmation.

May 2020

10th European Conference on Rare Diseases and Orphan Products

15 - 16 May, Stockholm, Sweden, please e mail martina.bergna@eurordis.org for more information.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June, Nice, France, please e mail martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 26/04/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases