Upcoming EURORDIS events

December 2018

EURORDIS Council of National Alliances (CNA) meeting

10 - 11 December, Paris.
For members of the CNA only. For more information please email  

EURORDIS Council of European Rare Disease Federations (CEF) meeting

11 - 12 December, Paris.
For members of the CEF only. For more information please email

February 2019

EURORDIS Black Pearl Awards 

12 February, Brussels
More information

3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies

13 - 14 February, Brussels
More information

Rare Diseases International 5th Annual Meeting

20 February, New York
More information

Rare Disease Day Policy Event at the United Nations

21 February, New York
More information

March 2019

EURORDIS Winter School 

11 - 14 March, Paris
More information

May 2019

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania
More information

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona
More information



Page created: 10/04/2015
Page last updated: 09/11/2018
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases