Upcoming EURORDIS events

February 2018

EURORDIS Black Pearl Awards

20 February, Brussels, Belgium More information

26th EURORDIS Round Table of Companies Workshop

21 February, Brussels, Belgium, More information

Opening event: Rare Lives – a photographic journey through the everyday life of people living with a rare disease

28 February, 12.30 - 13.00, European Parliament, Brussels, Belgium, register

European Reference Networks (ERNs) accelerating and improving diagnosis for rare diseases patients: An ERN-BOND White Paper on Diagnosis

28 February, 13.00 - 15.00, European Parliament, Brussels, Belgium, register

March 2018

CNA meeting

15 March, Brussels, Belgium (closed meeting, for more information contact

EURORDIS Winter School

19-23 March, Paris, France

May 2018

9th European Conference on Rare Diseases & Orphan Products (ECRD 2018 Vienna)

10-12 May 2018, Messe Wien Congress Center, Vienna, Austria.

EURORDIS General Assembly

10 May 16.30-18.30, Vienna

June 2018

EURORDIS Summer School 2018

11-15 June, Barcelona, Spain, More information



Page created: 10/04/2015
Page last updated: 07/02/2018
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases