ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Actelion Website Alexion Pharmaceuticals Inc. CLS Behring Novartis Pharmaceuticals
Pfizer PTC Therapeutics Roche Genzyme
Takeda Taysha    
• Emerald Members
Akcea Alnylam Akari Amicus Therapeutics


Audentes AvroBio Biogen
Biomarin Bluebird Bio Blueprint Boehringer Ingelheim GmbH
BMS Chiesi Farmaceutici SpA Cytokinetics GBT
Gilead Hansa Medical Horizon therapeutics insmed
MSD Europe Orchard Therapeutics Parexel Santen
SAREPTA Therapeutics Sciensus Swedish Orphan International UCB


 Vifor Fresenius Medical Care


• Sapphire Members
Abeona Aeglea Agios Alira
Amryt Amryt Avexis Bayer Schering Pharma AG
Bionical EMAS BridgeBio Clinigen Group Cydan
Dipharma ENZYVANT Généthon Généthon
GRIFOLS HealX insmed Lysogene-Q
Jazz Lundbeck Lysogene-Q Mereo Biopharma
Neurogene Ovid PassageBio RegenXBio
Sangamo Spark Spark Travere


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Page created: 19/08/2009
Page last updated: 23/06/2021
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases