Editorial Board

 

About EURORDIS

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About EURORDIS section are as follows: Zoe, Ariane, Virginie, Patrice, Eva, Raquel, Nancy, Francois, Mathieu, Denis, Lara, Sharon, Anja, Jean-Marc, Jill

 

About Rare Diseases

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About Rare Disease section are as follows: Eva, Lara, Denis

 

Rare Disease Policy

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Rare Disease Policy section are as follows: Ariane, Virginie, FrançoisEva, Lara

 

Orphan Drugs & Treatment

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Orphan drugs & treatments section are as follows: Virginie, Ariane, François, Elisa, Eva, Lara

 

Living with a Rare Disease

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Living with a Rare Disease section are as follows: Eva, Jean-Marc

 

Services to Patients

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Services to Patients section are as follows: Eva, Ariane, Denis, Raquel, Sharon

 

Training Resources

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Training Resources section are as follows:  Nancy, Eva

 

News & Events

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the News and Events section are as follows: Ariane, Anja, Sharon, Lara, Eva

Page created: 09/05/2016
Page last updated: 09/05/2016
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. A RareConnect é uma iniciativa da EURORDIS RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases