Editorial Board

 

About EURORDIS

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About EURORDIS section are as follows: Zoe, Ariane, Virginie, Patrice, Eva, Raquel, Nancy, Francois, Mathieu, Denis, Lara, Sharon, Anja, Jean-Marc, Jill

 

About Rare Diseases

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About Rare Disease section are as follows: Eva, Lara, Denis

 

Rare Disease Policy

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Rare Disease Policy section are as follows: Ariane, Virginie, FrançoisEva, Lara

 

Orphan Drugs & Treatment

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Orphan drugs & treatments section are as follows: Virginie, Ariane, François, Elisa, Eva, Lara

 

Living with a Rare Disease

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Living with a Rare Disease section are as follows: Eva, Jean-Marc

 

Services to Patients

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Services to Patients section are as follows: Eva, Ariane, Denis, Raquel, Sharon

 

Training Resources

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Training Resources section are as follows:  Nancy, Eva

 

News & Events

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the News and Events section are as follows: Ariane, Anja, Sharon, Lara, Eva

Page created: 09/05/2016
Page last updated: 09/05/2016
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rari, è un'iniziativa di EURORDISRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno, è un'iniziativa di EURORDISRare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases