International activities

EURORDIS is attracting an increasing number of patient organisations outside of Europe and is gaining traction at promoting rare diseases at the international level. Our vision is to unite, expand and reinforce the rare disease movement of patient organisations and patient advocates around the world.

 

 

EURORDIS' members around the world

EURORDIS' members around the world

 

 

NGO Committee for Rare Diseases

The NGO Committee for Rare Diseases engages at the UN level to elevate rare diseases to a priority within global public health.

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Rare Diseases International

RDI is a network of rare disease patient organisations and advocates interested in building the global alliance of rare disease patients and families across the world

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Rare Disease Day

Held on the last day of February, Rare Disease Day is an annual international awareness-raising event coordinated by EURORDIS

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RareConnect

RareConnect.org, the online network for rare disease communities, brings together patients, families, and groups from around the world who might otherwise be isolated

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Partners Around the World

Over the years, EURORDIS has attracted a growing number of patient organisations beyond Europe.

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IRDiRC

The International Rare Diseases Research Consortium (IRDiRC) fosters international collaboration in rare disease research

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International rare disease events

Check out the latest international rare disease events

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EURORDIS' international initiatives are supported by

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases