Take action

Find out how you can individually take action to get involved in EURORDIS activity.

 

Register to Rare Barometer Voices

Make your voice heard by registering to join Rare Barometer Voices and take part in our surveys

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Get involved in Rare Disease Day

Find out more about Rare Disease Day and the many ways in which you can get involved

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Nominate an awardee

Throughout September and October every year you can nominate an individual or organisation that has made an exceptional contribution to the rare disease community

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Volunteer

Find out how you can become a EURORDIS volunteer 

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases