Editorial Board

 

About EURORDIS

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About EURORDIS section are as follows: Zoe, Ariane, Virginie, Patrice, Eva, Raquel, Nancy, Francois, Mathieu, Denis, Lara, Sharon, Anja, Jean-Marc, Jill

 

About Rare Diseases

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About Rare Disease section are as follows: Eva, Lara, Denis

 

Rare Disease Policy

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Rare Disease Policy section are as follows: Ariane, Virginie, FrançoisEva, Lara

 

Orphan Drugs & Treatment

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Orphan drugs & treatments section are as follows: Virginie, Ariane, François, Elisa, Eva, Lara

 

Living with a Rare Disease

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Living with a Rare Disease section are as follows: Eva, Jean-Marc

 

Services to Patients

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Services to Patients section are as follows: Eva, Ariane, Denis, Raquel, Sharon

 

Training Resources

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Training Resources section are as follows:  Nancy, Eva

 

News & Events

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the News and Events section are as follows: Ariane, Anja, Sharon, Lara, Eva

Page created: 09/05/2016
Page last updated: 09/05/2016
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rare, Rare Diseases International est une initiative d'EURORDISRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect est une initiative d'EURORDIS RareConnect Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases