Editorial Board

 

About EURORDIS

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About EURORDIS section are as follows: Zoe, Ariane, Virginie, Patrice, Eva, Raquel, Nancy, Francois, Mathieu, Denis, Lara, Sharon, Anja, Jean-Marc, Jill

 

About Rare Diseases

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About Rare Disease section are as follows: Eva, Lara, Denis

 

Rare Disease Policy

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Rare Disease Policy section are as follows: Ariane, Virginie, FrançoisEva, Lara

 

Orphan Drugs & Treatment

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Orphan drugs & treatments section are as follows: Virginie, Ariane, François, Elisa, Eva, Lara

 

Living with a Rare Disease

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Living with a Rare Disease section are as follows: Eva, Jean-Marc

 

Services to Patients

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Services to Patients section are as follows: Eva, Ariane, Denis, Raquel, Sharon

 

Training Resources

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Training Resources section are as follows:  Nancy, Eva

 

News & Events

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the News and Events section are as follows: Ariane, Anja, Sharon, Lara, Eva

Page created: 09/05/2016
Page last updated: 09/05/2016
 
 
Die Stimme der Menschen mit seltenen Krankheiten in EuropaEURORDIS Die internationale Stimme für Menschen mit seltenen Krankheiten. Rare Diseases International ist eine EURORDIS-InitiativeRare Disease International Ein moderiertes mehrsprachiges Forum, das Patienten, Familien und Experten zum Erfahrungsaustausch zusammenführt. RareConnect ist eine EURORDIS-Initiative RareConnect Eine internationale Aufklärungskampagne, die jedes Jahr am letzten Tag im Februar stattfindet. Der Tag der Seltenen Erkrankungen ist eine EURORDIS-InitiativeRare Disease Day Nehmen Sie am größten Zusammentreffen von Interessenvertretern für seltene Krankheiten in Europa teil und besuchen Sie die zweijährliche Europäische Konferenz für Seltene Krankheiten und Orphan-Produkte (ECRD). ECRD ist eine EURORDIS-InitiativeEuropean Conference on Rare Diseases